Surfing the Sea

Since 1995

World Autism Acceptance Day 2019 — Apr 2, 2019

World Autism Acceptance Day 2019

Today is World Autism Awareness Day. But I also want it to be World Autism Acceptance Day. Why?

Because awareness is just that – merely being aware of the existence of something, or someone. In this case, it’s just knowing that autism is a thing, and because most people’s “awareness” of autism most likely came from Rain Man, it can be peppered with demeaning and even damaging stereotypes, such as thinking those with autism are antisocial and are only interested in themselves and one thing. The very reason it’s often called “autism spectrum disorder” is that it’s a spectrum, no two people can have the same form of autism.

So I’m calling for World Autism Awareness Day to be renamed World Autism Acceptance Day. People need to stop seeing autism as a nasty ‘disease’ or ‘epidemic’ that is taking their children and grandchildren away from them and as a ‘burden’ on society. In fact, many on the spectrum are positively contributing to society, including myself, and it’s been proved in many studies that if a business has autistic employees, they create a much more inclusive and diverse work environment.

It’s time to start accepting autism as one of the many wonderful things that add colour and variety to the otherwise grey world of ‘normality’. That’s why it’s called a spectrum! ūüĆą

Spectrum

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Why Autistic People Generally Dislike Autism Speaks — Apr 2, 2018

Why Autistic People Generally Dislike Autism Speaks

I don’t usually reblog posts from other people as I always strive to create my own content, but this is a special post for World Autism Awareness Day (today) and why Autism Speaks, one of the world’s leading autism charities, is generally reviled by autistic people themselves.

Instead of mere awareness, we also need acceptance. That’s why, from now on, I will call April ‘Autism Acceptance Month’ rather than just ‘Autism Awareness Month’.

Neurodivergent Rebel

Why Autistic People Generally Dislike Autism Speaks ‚Äď A few thoughts and a little history on Autism Speaks. #actuallyautistic #neurodiversity

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Why a Rainbow for Autism? — Apr 2, 2017
Autistic Pride Day 2016: A Part of Me — Jun 18, 2016

Autistic Pride Day 2016: A Part of Me

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The 18th of June each year is designated as Autistic Pride Day. First observed in 2005 by the Aspies for Freedom online group, which sadly no longer exists, 2016 marks¬†the 11th Autistic Pride Day. It aims to celebrate and recognize the talents of people who are living with an autism spectrum disorder (ASD) or Asperger’s Syndrome, like I¬†am.

I have previously written about my experiences of living with autism for World Autism Awareness Day and Month in April of this year, but this time I want to be a little more positive about my life with the condition as today is meant to celebrate pride of being autistic.¬†While of course autism presents me with various challenges, such as not being able to socialize as easily as ‘neurotypical’ people, difficulty in talking about things other than my special interests (namely Canada) and often feeling alone, it does come with many positives which help to compensate for the negatives.

If you’re a regular reader of mine, you’ll know that one of my biggest talents is writing, drawing and creating my own cartoon characters. My deep concentration on my creative works ever since I was a very little girl has helped me to hone my skills continuously over the years – something that has grown up with me well into my teens and early 20s (I’m currently 21 years old and I show absolutely no sign of stopping!) My special interests have played a significant¬†role in this utmost determination to be creative, and with Canada, it’s no exception – currently six years and still ongoing. My never-ending love of Canada and never giving up on my wish to go there is what helped me to achieve my ultimate dream of seeing it in real life, with me visiting Nova Scotia in February this year. And I’m still wishing to see it again, though this time in the summer.

People on the autism spectrum often use anthropomorphization of inanimate objects and abstract concepts to help them understand the world better, and this is what I do on a daily basis, which of course includes geographical locations (especially Canada!) But it’s not just countries or cities and towns which I personify – I’ve also used this technique with the days of the week, months of the year, and even the letters of the alphabet. In 2013, I created Alphabet City, which follows 26 inhabitants of the eponymous city who are each given a name beginning with each letter of the alphabet from A to Z. (Their character profiles will be up on this blog a little later on!)

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Cast of Alphablocks
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Humanized Cast of Alphablocks

So as you can see, I’m a lot more than just a ‘girl with autism’ – I have my own personality, likes, dislikes and talents just like every other person around the world, whether autistic or not. But I’m proud to be autistic because of the ‘extra goodies’ it gifts me with. This is why I hate it when autism is referred to as a ‘disease’, but we all know it’s not, and so it can’t be cured. It is simply a part of us.

If there’s pride for those who are LGBT, then why shouldn’t there be pride for those living on the autism spectrum? We should stop seeing autism as a ‘tragedy’ and instead see the good side of the autistic community, and accept their autism as part of what makes them who they are.¬†And that applies to me and everybody who I meet up with.

Let’s celebrate the wonderful world of autism and its amazing inhabitants!

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World Autism Awareness Day and Month 2016: My Experiences on the Autism Spectrum — Apr 2, 2016

World Autism Awareness Day and Month 2016: My Experiences on the Autism Spectrum

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Today, April the 2nd, is World Autism Awareness Day. In fact, the entire month of April is designated as World Autism Awareness Month, aiming to help get people of all neurological builds to be aware of the developmental condition known as autism. It is thought to affect 1 in 68 people in the United States and 1 in 100 in the United Kingdom, where I’m based. So autism seems more common in the US than in the UK, and the reason it’s slightly less uncommon in the UK seems to be a mystery to me.

I live with¬†autism myself. Autism and Asperger’s Syndrome (a similar condition) are often grouped together on a scale popularly called the ‘autism spectrum’. The autism I have is often termed as ‘high-functioning autism’, as many of my abilities are higher compared to people with severe autism, who often have great difficulty communicating properly and learn a lot slowly. However, many autistic people do not like this way of labelling autism based on abilities, as it can lead to unnecessary and unfair comparison of what one autistic person can do with what another¬†cannot, which can then lead on to bullying and social¬†ostracizing. Autism is a lifelong condition – it is not a disease and so cannot be cured. I get very sceptical whenever someone says that it can be cured.

Around the age of 2 (which is incidentally when I started drawing for the first time), my parents would notice that I would line up things such as video tapes and toys in a certain order, which is a common sign of autism and also possibly a connection with obsessive-compulsive disorder (OCD). They also noticed that I wasn’t talking that much – I didn’t start making full sentences until I was about 4 or 5 – and that I was always engrossed in playing with my toys and games or watching TV. Often these would become the subjects of my¬†obsessive thoughts – I remember I used to watch Numbertime and¬†Disney’s Sing-Along Songs countless times, often destroying beds by excessive jumping from excitement in the process.¬†(My sister Melissa was born in 1997, two years after me. If one child in a family has autism, there is a 15% chance of their siblings also having the condition, but Melissa does not have it while I do.) I distinctly remember waking up early one morning to play music at a loud volume on the stereo while my parents and Melissa were still asleep; somehow they didn’t hear it, as they may have been in a deep sleep.

At primary school, I learnt at a normal pace, although I would sometimes be distracted and try to draw (this sort of habit led me to create the Adventure Advanced Gang in 2005) in an attempt to stop stress getting the better of me. Sometimes I would torment other children in the playground (when usually it would be the other way around) to try to draw¬†attention to myself, and this would sometimes re-emerge at home with me trying to make Melissa’s life a misery with me trailing her around all the time.

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The Adventure Advanced Gang Christmas Wrapping Paper Design

Moving to Colombia only worsened my erratic habits and behaviour – I actually started regressing in¬†my education as the stress of moving to a new, unfamiliar place became too much for me to handle. So we moved back to England almost two years later, and the¬†pain of re-adjusting to a new life in London continued into the first few months of secondary school, with me practically bringing down the school in fits of rage and uncontrollable stress. Luckily for both myself and my family, I eventually got my act together and started to improve my behaviour, working hard towards my GCSEs. It is during this time that I created some of my most successful series – Britain Boys, American Boys and finally Canadian Boys, which I’m still wildly¬†working at today thanks to my passion of Canada which just keeps on growing.

Today, I’m at university hoping to graduate with a Bachelor’s Degree in Digital Media this July, and of course still working at my creative talents on a regular basis. I always like to look at the positives of autism rather than the negatives (so in Inside Out, I’m more like Joy rather than Sadness), so having a strong passion for something – in this case, art and Canada – helps me focus on my long-term dreams of living in Canada and establishing my own animation studio, Surfing the Sea (which is why I’ve named my blog that), in the hopes of becoming the next Disney/Pixar or DreamWorks. I want to be the female Steve Jobs – a lifelong computer geek (I started using computers at the mere age of 5!) and a huge animation enthusiast!

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Steve Jobs vector style with Apple rainbow

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So while autism of course has its challenges and can often take a very long time to be diagnosed (I was officially given my diagnosis of autism when I was 14, 12 years after I was first suspected to have it), people should also accept autism as a lifelong condition which cannot be cured, and appreciate the differences and talents¬†those on the autism spectrum have. Albert Einstein and Isaac Newton, two famous scientists, are often thought to have had some form of autism due to their amazing genius, as are Bill Gates (the former boss of Microsoft and now a philanthropist) and even Steve Jobs to some extent. Boys are more likely than girls to have autism, but Temple Grandin (scientist and advocate for autism) and Jessica-Jane Applegate (Paralympic¬†athlete who won a gold medal in¬†swimming at the 2012 London Games) are two famous names who just so happen to be women living with autism or Asperger’s syndrome. As am I.

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Albert Einstein
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Isaac Newton
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Bill Gates
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Temple Grandin
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Jessica-Jane Applegate
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Sabrina Gardiner (me!)

While it’s important that people should be aware of autism, they should also respect those who live on the spectrum and see the person before the disability. I therefore not only propose that April should be World Autism Awareness Month, but also World Autism Acceptance Month – and every day, not just the 2nd of April, should be a World Autism Awareness & Acceptance Day.

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